"Life Isn't About Waiting for the Storm to Pass; it's About Learning to Dance in the Rain"
During my 38th year of life I changed- a great change- a change that I guess looking back was forced on to me. I thought that I had a great life and I was growing as a person every day. It was August 17th, 2010 when everything changed.
My name is Stacey Jewett and I started this page as I have Guillian-Barre Syndrome.
I wanted to do this in order to raise awareness, this is my story. I may have forgotten parts (which might come to me later), things might not follow in exact order or sequence but I have written it as I remember it and as it comes to me. I have added lots of detail as I feel it is important and I have written how I felt. Everything written is from my perspective.
GBS is different but similar for everyone who is affected, it is a syndrome that needs more research to determine what causes it to occur, in my case the doctors were unable to determine what caused my GBS.
This has been a life changing journey for me- I am grateful for all that I have and that I am doing as well as I am, I truly believe that I am a walking miracle and things could have turned out so differently.
Much awareness, support and research is needed when it comes to GBS.
I have attached a video below discussing GBS. In the link they discuss that the myelin sheath of the nerves are damaged, in my case the axons inside in the nerves were extremely damaged, something my neurologist indicated was very rare from what he has seen and extremely serious.
My name is Stacey Jewett and I started this page as I have Guillian-Barre Syndrome.
I wanted to do this in order to raise awareness, this is my story. I may have forgotten parts (which might come to me later), things might not follow in exact order or sequence but I have written it as I remember it and as it comes to me. I have added lots of detail as I feel it is important and I have written how I felt. Everything written is from my perspective.
GBS is different but similar for everyone who is affected, it is a syndrome that needs more research to determine what causes it to occur, in my case the doctors were unable to determine what caused my GBS.
This has been a life changing journey for me- I am grateful for all that I have and that I am doing as well as I am, I truly believe that I am a walking miracle and things could have turned out so differently.
Much awareness, support and research is needed when it comes to GBS.
I have attached a video below discussing GBS. In the link they discuss that the myelin sheath of the nerves are damaged, in my case the axons inside in the nerves were extremely damaged, something my neurologist indicated was very rare from what he has seen and extremely serious.